Partial Bibliography

Compiled by Esther A. Gómez-Nieto, Ronnie Schneiderman, and Edward Schneiderman, PhD.

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 A Room of Golden Shells:  100 Works by Artists and Writers with Down Syndrome.  Compiled by Woodbine House.  Bethesda:  Woodbine (240 pages, ISBN-10: 1606131702; ISBN-13: 978-1606131701)

Adams, Rachel.  Raising Henry:  A Memoir of Motherhood, Disability & Discovery.  New Haven:  Yale University Press, 2013. (272 pages, ISBN-10: 0300180004; ISBN 13:  978-0300180008)

Albrechtson, Gail. Natural Harmony: Jade’s Story. Victoria, BC: Trafford Publishing, 2003. (200 pages, ISBN 1-4120-0392-X)

Alix, Noelle and Angela Martin. Just Cate: A Dual Memoir By Lifelong Friends. Avon: Just Cate, LLC, 2012. (352 pages, ISBN-13: 9780985445607)

Beck, Martha. Expecting Adam: A True Stroy of Birth, Rebirth, and Everyday Magic. New York: Berkley Books,1999, 2011. (368 pages, ISBN 0-425-17448-4; ISBN-13: 9780425174487)

Becker, Amy Julia.  A Good and Perfect Gift:  Faith, Expectations, And A Little Girl Named Penny.  Bloomington:  Bethany, 2011 (237 pp., ISBN-10: 0764209175; ISBN-13: 978-0764209178)

Bowman-Kruhm, Mary. Everything You Need to Know About Down Syndrome. New York: Rosen Publishing Group, 2000. (Ages 9 – 11, ISBN 0-8239-2949-3)

Brill, Marlene Targ. Keys to Parenting a Child with Down Syndrome. Hauppauge: Barron’s Educational Series 1993. (ISBN: 0-8120-1458-8).

Bruni, Maryanne. Fine Motor Skills for Children With Down Syndrome: A Guide for Parents And Professionals. Bethesda: Woodbine, 2006. (ISBN 1-8900627-67-4)

Buckley, S. Living with Down Syndrome. Portsmouth, UK: The Down Syndrome Educational Trust, 2000.  (ISBN 1-903806-01-1).

Cairo, Shelley, Jasmine Cairo, Irene McNeil (photography).  Our Brother Has Down Syndrome. Buffalo:  Firefly, 1985.  (Ages 4 – 8, ISBN 0-920303-30-7, hardcover, ISBN 0-920303-31-5, paperback)


Caldas, Stephen J.  & Bensy, Mary Lou. (2014).  The sexual maltreatment of students with disabilities in American school settings.  Journal of Child Sexual Abuse, 23(4), 345-366.  DOI: 10.1080/10538712.2014.906530. Link to the online version of the article:

Carroll, Bruce.  Sometimes Miracles Hide:  Stirring Letters from Those Who Discovered God’s Blessings in a Special Child.  West Monroe:  Howard Books, 1999.  (125 pages, ISBN 1-58229-071-7)

Chicoine, B, & McGuire, D. E. The Guide to Good Health for Teens and Adults with Down Syndrome. Bethesda, MD: Woodbine House, 2010. (ISBN 978-1-890627-89-8)

Cohen, W. I. Down Syndrome: Visions for the 21st Century. New York: Wiley-Liss, 2002. (ISBN: 0471418153)

Couwenhoven, M.S., Terri. Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality:  A Guide for Parents and Professionals.  Bethesda:  Woodbine House, 2007, (Paperback, 332 pages ISBN 978-1-890627-33-1)
 Couwenhoven, M.S., Terri. The Girls' Guide to Growing Up:  Choices & Change In the Tween Years.  Bethesda:  Woodbine., 2012 ( 62 pp., ISBN: 978-1-60613-026-1)

Cunningham, Cliff. Undertanding Down Syndrome: An Introduction for Parents. 3rd Ed. Brookline: Brookline Books, 1996 (256 pages, ISBN: 1571290095) 

Down's Syndrome Research Foundation (2005). Bright Beginnings: A Guide for New Parents. Buckinghamshire, UK: Down's Syndrome Research Foundation.

Dykens EM (2007).  Psychiatric and behavioral disorders in persons with Down syndrome. Ment Retard Dev Disabil Res Rev 13 (3): 272–78. doi:10.1002/mrdd.20159. PMID 17910080.

Edwards, Kim.  Memory Keeper’s Daughter (a novel).   New York:  Viking Adult, 2005.  (416 pages, ISBN 9780670034161—hardcover, ISBN 9780143037149, Penguin, paperback)

Estreich, George. The Shape of the Eye: A Memoir. NY: Penguin, 2013 (336 pages, ISBN-13: 9780399163340)

Flemming, Virginia.  Be Good to Eddie Lee.  New York:  Putnam Juvenile, 1997.  (Ages 4 – 8, 32 pages, ISBN 978-0698115828)

Flinn, Alex.  Fade to Black.  New York:  Harper Tempest, 2006. (Ages 12+, 192 pages, Teacher’s Guide Available, ISBN 0060568399)


Gallagher, Jeffrey M., Wilderness Blessings:  How Down Syndrome Reconstructed Our Life and Faith.  St. Louis:  Chalice Press, 2013.  (218 pages, ISBN 10:  0827243081; ISBN 13:  978-0827243088)

Geraghty, Helen Monsoon. Chris Burke: Actor. New York: Chelsea House, 1995. (Ages 9-12, 111 pages, ISBN: 0791020819 9780791020814)

Girnis, Meg. ABC for You and Me. Morton Grove: Whitman & Co, 2000. (Ages 3 –7, 32 pages, ISBN: 978-0-8075-0101-6)

___. 1, 2, 3 for You and Me. Morton Grove: Whitman & Co., 2001. (Ages 3 - 9, 32 pages, ISBN: 978-0-8075-6107-2)

Glatzer, Jenna. Taking Down Syndrome to School. New York: Jayjo Books, 2002.
(Ages 5 – 10, 30 pages ISBN: 978-1891383199)  



Groneberg, Jennifer Graf.  Road Map to Holland:  How I Found My Way Through My Son's First Two Years With Down Syndrome.  New York: Nal Trade (292 pages, ISBN-10: 0451222954; ISBN-13: 978-0451222954)

Goodhart, Pippa. Ginny’s Egg. London: Heinemann, 1995. (Ages 9-12, 142 pages, ISBN: 978-0749745578)

Goodwin, T.C., & Wurzburg, G. Down Syndrome in the Inclusive Classroom. [videorecording]. Princeton, NJ: Films for the Humanities & Sciences, 2003. (ISBN 978-1-60825-754-6)

Gregory, Nan (author) Ron Lightburn (illustrator). How Smudge Came. Red Deer: Red Deer College Press 1997. (Ages 5 – 8, ISBN: 0-88995-143-8 – Northern Lights Books for Children)

Hale, Natalie.  Down Syndrome Parenting 101:  Must Have Advice for Making Your Life Easier.  Bethesda:  Woodbine, 2011.  (242 pages, ISBN 10: 160613020X: ISBN-13: 978-1606130209

Hale, Natalie.  Whole Child Reading:  A Quick-Start Guiide to Teaching Students with Down Syndrome and Other Developmental Delays.   Bethesda:  Woodbine, 2016.  (186 pages, paperback, ISBN 978-1-60613-283-8)

Hassold, T.J.; D. Patterson, editors. Down Syndrome: A Promising Future, Together. New York: Wiley Liss, 1998. (293 pages, ISBN-10: 0471296864, ISBN-13: 978-0471296867)

Hostmeier, DeAnna., PhD.  Teaching Math to People with Down Syndrome and Other Hands-On Learners:  Strategies and Materials for Students with Learning Challenges. Bethesda: Woodbine House, 2016. (376 pages, Paperback, ISBN 978-1-60613-278-4)

Jacob, Jen and Mardra Sikora.  The Parent's Guide to Down Syndrome:  Advice, Inspiration, and Support for Raising Your Child from Diagnosis Through Adulthood.  (256 pages, Paperback, ISBN: 9781440592904) 

Kats, Jewel.  Hansel and Gretel:  A Fairy Tale with a Down Syndrome Twist.  Ann Arbor:  Loving Healing Press, 2014. (Paperback, 44 pages, ISBN-10: 1615992502, ISBN-13: 978-1615992508)

Kingsley, Jason and Mitchell Levitz. Count Us In: Growing Up with Down Syndrome. San Diego: Harvest Books, 1994. (Paperback, 208 pages, ISBN: 01562260X)

Klein, Stanley and Kim Schive, eds. You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children With Disabilities. Brookline: Disabilities Books, 2002. (278 pages, ISBN 1-57566560-3)

Koch, Richard; De La Cruz, Felix F, eds. (1975). Downs Syndrome...: Research, Prevention and Management. Proceedings of a Conference on Down's Syndrome. New York: Brunner/Mazel. (ISBN 0-87630-093-X) 

Koontz, Dean. The Bad Place. New York: Berkley, 2004. (448 pages, ISBN 9780425195482)

Kumin, Libby. Classroom Language Skills for Children with Down Syndrome: A Guide for Parents and Teachers. Bethesda: Woodbine House, 2001. (375 pages, paperback, ISBN: 978-1-890627-11-9)


____. Communication Skills in Children With Down Syndrome: A Guide for Parents. Bethesda: Woodbine House, 1994. (ISBN 0-933149-53-0)


____. Early Communication Skills for Children with Down Syndrome: A Guide for Parents and Professionals. 2nd Ed. Bethesda: Woodbine House, 2003. (236 pages, ISBN 978- 1-890627-27-0)


Lendahl-Gonzales, Gennifer A.  A Very Special Gift: A Story About Life and Translocation Down Syndrome.  Amazon, 2013.  (68 pages, ISBN/EAN-13 1483987353/9781483987354)


MacDonald, J.D. (2004). Communicating partners:  30 years of building responsive relationships with late-talking children including autism, Asperger's syndrome (ASD), Down syndrome, and typical development: Development guides for professionals and parentsPhiladelphia, PA: Jessica Kingsley Publishers. (ISBN-13: 978-1843107583)

MacGregor, Ph.D., John.  Metamorphosis: The Fiber Art of Judith Scott. Oakland: Creative Growth Art Center, 1999. (ISBN-10: 0967316006 | ISBN-13: 978-0967316000)  

McElwee, Sandra Assimotos.  Who's the Slow Learner? A Chronicle on Inclusion and Inclusion.  Denver:  Outskirts Press Inc., 2014.  (336 pages, ISBN 978-1-4787-2590-9)

McElwee, Sandra Assimotos.  My Name is Sean and I Have Something to Share.  Denver, Outskirts Press, Inc., 2014.  (36 pages, 978-1-4787-2957-0)

McGuire, Dennis and Brian Chicoine. Mental Wellness in Adults with Down Syndrome. Bethesda: Woodbine, 2006. (460 pages, ISBN 978-1-890627-65-2)

Medlen, J.E.G. The Down syndrome nutrition handbook: A guide to promoting healthy lifestyles. Bethesda, MD: Woodbine House, 2002. (448 pages, ISBN: 978-0978611804)

Miller, John F, Mark Leddy and Lewis A. Leavitt, eds. Improving the Communication of People with Down Syndrome. Baltimore: Brookes, 1999. (304 pages, ISBN 1-55766-350-5)

Morris, Catherine Avril. Casidy's Daddy.  Book 2 of the Rose Quartz Series. Create Space Independent Publishing Platform, 2014. (290 pages, ISBN-10: 1502412683, ISBN-13: 978-1302412683)

Murray, Teresa. Attitude to Gratitude. Jamestown, RI: Teresa Murray , 2012. (34 pages, ISBN 9781300370468) | The author has Down syndrome

Oelwein, Patricia Logan.  Teaching Reading to Children with Down Syndrome:  A Guide for Parents and Teachers.  Bethesda:  Woodbine House, 1995.  (392 pages, ISBN 978-0-933149-55-7)

Palmer, Gregg.  Adventures in the Mainstream:  Coming of Age with Down Syndrome.  Bethesda:  Woodbine House, 2005.  (352 pages, ISBN:  978-1-890627-30-0)

Parker, V.  I Know Someone With Down Syndrome Chicago, IL: Heinemann Library, 2011. (32 pages, ISBN-13: 978-1432945749)

Pitzer, Marjorie W.  I Can, Can You?  Bethesda:  Woodbine House, 2004. (Baby – Preschool, ISBN 1-890627-57-7)

Pueschel, Siegfried. M.  A Parent’s Guide to Down Syndrome:  Towards a Brighter Future.  2nd Ed.  Baltimore:  Brookes, 2001.  (338 pages, ISBN 1-55766-452-8)

____, ed.  Adults with Down Syndrome.  Baltimore:  Brookes, 2006.  (320 pages, ISBN 1-55766-811-6)

Rabe, Berniece.  Where’s Chimpy?  Morton Grove:  Whitman & Co., 1991.  (ISBN:  978-0-8075-8927-4)

Rickert, Janet Elizabeth. Russ and the Firehouse. Bethesda: Woodbine House, 1999. (Ages 3-7, 24 pages, ISBN: 978-1-890627-17-1)

Rickert, J. E. Russ and the Almost Perfect Day. Bethesda, MD: Woodbine House, 2000. (Call Number: 6 .R533)

Roberts, Mark. Night Riders. Andersen Press, 2001. (ISBN 1842700227)

Rondal, J.A. The Adult with Down Syndrome: A New Challenge for Society. Philadelphia, PA: Whurr, 2004. (287 pages, ISBN 9781861563972)

Schermerhorn, Will. Discovery DVD: Pathways to Better Speech for Children With Down Syndrome. Vienna, VA: Blueberry Shoes Productions, 2005. ISBN 978-0-9748071-4-0. (DVD, 81 minutes, public performance rights not included).

Schermerhorn, W. Down Syndrome: The First 18 Months. [videorecording]. Blueberry Shoes Production, 2004. (ASIN: B0001I54PM)

Scott, Judith and Joyce

Seikowitz, Mark. Down Syndrome The Facts. 2nd Ed. New York: Oxford University Press, 1997.

Shriver, Maria, Sandra Speidel (illustrator). What’s Wrong With Timmy? Little, Brown, 2001. (Ages 5 – 9, ISBN 0-316-23337-4)


 Silverman, Amy.  My Heart Can't Even Believe It: A Story of Science, Love, and Down Syndrome.   Bethesda: Woodbine House, 2016.  (282 pages, Paperback, ISBN 978-1-60613-274-6)


Simmons, Jo Ann, M.S.W.  The Down Syndrome Transition Handbook:  Charting Your Child's Course to Adulthood.  Bethesda:  Woodbine House, 2010. (292 pages, paperback, ISBN 978-1-890627-87-4)

Skramstad, Sherry. Wendy's Wisdom: The Challenges and Accomplishments of a Woman with Down Syndrome. Mustang: Tate Publishing, 2010. (232 pages, paperback, ISBN 978-1-61566-612-6)

Skotko, Brian and Cynthia Kidder.  Common Threads:  Celebrating Life with Down Syndrome, 2nd ed.  Bands of Angels Press, 2007. (192 pages, paperback, ISBN-13:978-930868; ISBN: 1-93086814-6).

Skotko, Brian & Susan P. Levine, Fasten Your Seatbelt:  A Crash Course on Down Syndrome for Brothers and Sisters.  Bethesda:  Woodbine, 2009.  (192 Pages, Ages 11-19, ISBN 978-1-890627-86-7)

Soper, Kathryn Lynard, editor. Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives. Bethesda: Woodbine House, 2007. (326 pages, paperback, ISBN 978-1-890627-85-0)

Stray-Gundersen, Karen (editor). Babies with Down Syndrome: A New Parent’s Guide. 2nd ed. Bethesda: Woodbine House, 1995. (340 pages, paperback—Resource list included, ISBN: 978-0-933149-64-9). Also published in Spanish.

Stuve-Bodeen, Stephanie. We’ll Paint the Octopus Red. Bethesda: Woodbine House, 1998. (Ages 3-7, 25 pages, ISBN: 978-1-890627-06-5)

Stuve-Bodeen, Stephanie. The Worst Best Brother. Bethesda: Woodbine House, 2005. (Ages 4-8, 26 pages, ISBN: 978-1-890627-68-3)

Tupper, L. N., & Bersani, S. My sister, Alicia May. Raynham Center, MA: Pleasant St. Press, 2009. (32 pages, ISBN-13: 978-0979203596)

Van Dyke, DC; Mattheis, PJ; Schoon Eberly, S; Williams, J. Medical and Surgical Care for Children with Down Syndrome. Bethesda, MD: Woodbine House, 1995. (ISBN 0-933149-54-9)

Various authors.   Psychiatric Disorders and Down Syndrome Abstracts.

Vredevelt, Pam. Angel Behind the Rocking Chair: Stories of Hope in Unexpected Places. G. K. Hall, 2000. (ISBN 0-7838-9007-9)

Walker-Hirsch, Leslie, ed. The Facts of Life... and More. Baltimore: Brookes, 2007. (320 pages, ISBN 978-155766714-4)

When Down Syndrome and Autism Intersect.  A Guide for Parents and Professionals.  Edited by Margaret Froehlike, R.N. & Robin Zaborek.  Bethesda: Woodbine House. 2013.  (240 pages, ISBN 978-1-60613-160-2) 

Winders, PT, Patricia C., Gross Motor Skills in Children With Down Syndrome: A Guide for Parents and Professionals. 2nd Ed. Bethesda: Woodbine House, 2014. (521 pages, 400 photos, ISBN 978-1-60613-009-4)

Woloson, Eliza. My Friend Isabelle. Bethesda: Woodbine House, 2003. (Ages 2 – 6, 28 pages, ISBN: 978-1-890627-50-8, also: Teacher’s guide)

Wood, June Rae. The Man Who Loved Clowns. New York: Puffin, 2005. (8 - 12 years, 224 pages, ISBN 9780142404225)

World Congress on Down Synrdome. Down Syndrome Across the Life-Span. ed, by Monica Cuskelly, Anne Jobling, and Susan Buckley. Philadelphia, PA: Whurr, 2002. (300 pages, ISBN-13: 978-1861562302)

World Educational Resources. Downs syndrome: What Teachers Need to Know. [videorecording]. Ft. Lauderdale, FL: Education, 2000. (ASIN: B008WUAHU8)

Zuckoff, M. Choosing Naia: A Family's Journey. New York: Beacon Press, 2002 (312 pages, ISBN 0-8070-2817-7)