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The Up of Down: An Insight Into the World of Down Syndrome

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Furthering Awareness and Supporting Research on Down Syndrome

A panel of experts and family members touched by Down syndrome  
Monday, September 27, 2010 
Briarcliffe College, Patchogue Campus
9:50 – 11:10 AM, Room 223
225 W. Main Street, Patchogue, NY 11772

Speakers:  Feeley, Gómez-Nieto, Kelly, Sperber

  

Tuesday, September 28, 2010

Briarcliffe College, Bethpage Campus

9:50 – 11:10 AM, Great Room (1 NH)

1055 Stewart Avenue, Bethpage 11714

Speakers:  Barry, Feeley, Gómez-Nieto

Monday, October 4th, 2010
Briarcliffe College, Queens Campus
11:30 AM to 1 PM, Room Q4
30-30 Thomson Avenue, Long Island City, NY 11101
Speakers: Dean, Gómez-Nieto, Smith 
Thursday, October 14th, 2010
Long Island University/C. W. Post Campus
2 to 4 PM, Top of the Commons at Hillwood Commons
720 Northern Blvd, Brookville, NY 11548
Speakers:  Barry, Dean, Feeley, Gómez-Nieto, Hoffman 

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Michael Smith (ACDS)
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Esther Gomez-Nieto, Alexander's Angels
Cecilia Barry, ACDS
Mike Hoffman, DSAF
Kathleen Feeley, L.I.U/C. W. Post
Jack Dean, DSRTF/RDS
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Michael Kelly (DSAF)

Cecilia Barry, M.S., P.D., SBL/SDL, has been at ACDS (Association for Children with Down Syndrome) for 26 years in the capacity of School Psychologist, Director of Intake and Evaluation, and is now the Principal of ACDS.  Her presentation will reflect ACDS.’s mission statement “to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities” through description of new educational/parent programs which ACDS has established in Early Intervention and Preschool, their 5 Plus Program and adult residence services.  

Jack Dean, Executive VP with Power Battery Co. of Patterson, NJ and Board Advisor of the Down Syndrome Research and Treatment Foundation is responsible for organizing many DSRTF fundraising activities in the NY/NJ area, is also associated with Research Down Syndrome and is the father of an adult son with Down syndrome.  His presentation describes the general makeup of the DS community, his experience with raising a DS child and the breakthrough research that will change their lives He goes through his journey from his son’s birth to where he is today and what his family has had to go through to adjust to his life.

Kathleen M. Feeley, PhD, BCBA, an Associate Professor and Director of Center for Community Inclusion at the C. W. Post Campus of Long Island University has an active research agenda in the development of effective interventions to meet the needs of young children with developmental disabilities (specifically Down syndrome and Autism). Dr. Feeley serves on the editorial board for the journal Down Syndrome Research and Practice, provides technical assistance to several school districts to facilitate inclusive education programs for children with Down syndrome, and through her work with the Down Syndrome Advocacy Foundation has received funding to support preschoolers with developmental disabilities in community preschools in Suffolk County.  Her presentation “Research Demonstrating the Use of Behaviorally Based Strategies to Meet the Needs of Young Children with Down Syndrome” is based on the work she is conducting.

Esther Gómez-Nieto, M.S., Retired Visiting Instructor from SUNY College at Old Westbury since 2006, Esther shares her personal experience as a grandmother to a 9 year-old child with Down syndrome and her role in establishing Alexander’s Angels, Inc.  Alexander’s Angels is responsible for organizing the Long Island Buddy Walk, the panel presentation The Up of Down:  An Insight Into the World of Down Syndrome , and DOWNrightART, exhibits of the works of artists with Down syndrome and other projects to promote awareness of the  contributions of individuals with Down syndrome to society.

Mike Hoffman, DSAF.  Mike Hoffman is a parent of four boys, one of whom has Down syndrome. Mike is a founding member of the Down Syndrome Advocacy Foundation, a not-for-profit organization that assists families and individuals with Down syndrome in accessing inclusive environments. Mike is a graduate of Partners in Policy Making and has had a profound effect on services for children with Down syndrome on Long Island.

Michael Francis Kelly, Esq.  Mr. Kelly is the Principal of Kelly Development Corp. focusing on redeveloping blighted sites throughout Long Island.  He  serves on the Board of Directors of the Down Syndrome Advocacy Foundation. Mike lives in Stony Brook with his wife and 4 children, including Owen who has Down syndrome. Mr. Kelly has advocated for inlcusive preschool and elementary school placements for Owen who is currently a 6th grader in his local elementary school.

Michael M. Smith, has been Executive Director of the Association for Children with Down Syndrome since 2004 and has seen the agency grow to today where it serves almost 1,000 individuals annually in its school, 5Plus, residential, service coordination, and camp programs. ACDS has 250 employees and has an annual budget in excess of $13million. Michael is a graduate of Tufts University and has worked with special needs populations for over 30 years. Earlier this year he was honored by Exceptional Parent magazine at Citifield for his years of exemplary service to the developmentally disabled. He lives with his family in Greenwich, CT.

Linda Sperber,  Director of Program Development for the Association for Children with Down Syndrome.  It is ACDS’s mission “to provide lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities”

PAST PROGRAMS

 September 30 2009

Panelists:  Jack Dean (DSRTF), Aimee Escoffier & Carol Sweeney (ACDS), Joanne Fevang (DSAF), and Esther Gómez-Nieto (Alexander's Angels)

Briarcliffe College, Patchogue Campus

225 W. Main Street, Patchogue, NY 11772 , 11:40 a.m. to 1:10 p.m.

September 29, 2009

Panelists:  Leslie Granger (ACDS), Joan Fevang (DSAF), Jack Dean (DSRTF), Esther Gómez-Nieto (Alexander's Angels),

Briarcliffe College, Bethpage Campus

1055 Stewart Avenue, Bethpage, NY 11714 , 11:40 a.m. to 1:00 p.m.

   Saturday, April 4, 2009
Introduction:  Esther Gómez-Nieto (Alexander's Angels)
Presenter:  Mike Hoffman, DSAF President
Special Presentation:  Traylor McClellan, Founder of the Down Syndrome Store
Casa Frela
 47 West 119th Street, NYC, 12:30 PM

Saturday, March 28, 2009
IntroductionEsther Gómez-Nieto (Alexander's Angels)
Presenter: Stephen M. Lazare,DSRTF Board Member
Special Presentation:Traylor McClellan. Founder of the Down Syndrome Store  
Casa Frela
 47 West 119th Street, NYC, 12:30 PM

October 3, 2007
Panelists: Mike Hoffman (DSAF), Cecilia Barry (ACDS), Jack Dean (DSRTF), Dr. Kathleen Feeley (C. W. Post), Esther Gomez-Nieto (Alexander's Angels)
Long Island University C. W. Post
Hillwood Commons , Top of the Commons, 720 Northern Blvd, Brookville, 12:30 p.m. to 2 p.m.

November 11, 2008
Panelists: Jack Dean (DSRTF) Esther Gomez-Nieto (Alexander's Angels)
Saint Joseph’s College
McGann Conference Room, O'Connor Building (3rd Fl), 155 West Roe Blvd., Patchogue, 12:40 to 1:30 p.m.
(Short program at this site) 

September 24, 2008
Panelists: 
Aimee Scoffield (ACDS), Mike Hoffman (DSAF), Jack Dean (DSRTF), Kathleen Feeley (L.I.U. C. W. Post), Esther Gomez-Nieto (Alexander's Angels)
Briarcliffe College, Bethpage Campus
Great Room, 1055 Stewart Avenue, Bethpage, 11:40 a.m. to 1:10 p.m. 

September 22, 2008
Panelists: 
Cecilia Barry (ACDS), Mike Hoffman (DSAF), Jack Dean (DSRTF), Kathleen Feeley (L. I. U. C. W. Post Campus), Esther Gomez-Nieto (Alexander's Angels)
Long Island University
Pioneer Room at Hillwood Common, 720 Northern Boulevard, 12:30 to 2:00 p.m. 

May 2008
Panelists: Cecilia Barry (ACDS), Mike Hoffman (DSAF), Jack Dean (DSRTF), Dr. Kathleen Feeley (C. W. Post), Esther Gomez-Nieto (Alexander's Angels)
State Farm, Lake Success
(Employees only-not open to the general public)

October 10, 2007
PanelistsCecilia Barry (ACDS), Mike Hoffman (DSAF), Jack Dean (DSRTF), Dr. Kathleen Feeley (L.I.U./C.W. Post Campus), Esther Gomez-Nieto (Alexander's Angels)
 Briarcliffe College, Bethpage Campus
Great Room., 1055 Stewart Avenue, Bethpage, 12:00 to 1:30 p.m.

If you would like to host this program, please contact us at alexandersangels@gmail.com