The Up of Down:
An Insight Into the World of Down Syndrome. Since 2007, Alexander's Angels regularly organizes panel
presentations free of charge hosted by local colleges and businesses to acquaint the community with different aspects of Down
syndrome. It collaborates with other Down syndrome organizations by inviting representatives from several Down syndrome
organizations, psychologists, researchers, educators, and self-advocates. To host an event at your site please email your
request with two or three possible dates and times (evenings are a possibility) at email@example.com.
Notice: The researchers' program originally
scheduled for October 11 will take place on Wednesday, March 20, 2019. Check the World Down Syndrome Day page for
details as they become available.
Roslyn High School
Ms. Kinshasa Allen, Social Studies teacher and adviser to the
club SUSS -- Student's United for Safer Schools - and their members pose for a picture with our panel The Up of Down: An
Insight Into the World of Down Syndrome. The panel sitting from left to right: Educator Mark Mihopulos, Self-Advocates Brittany
Schiavone and Katherine Giunta, Moderator Esther Gomez-Nieto, and Self-Advocate Kyle Erickson with Ms Allen. Attending the
program were also Child Psychology, AP Psychology students, and members of the school faculty. We thank Ms. Kinshasa Allen
and the school for their hospitality.
KYLE ERICKSON. Kyle has served as a self-advocate at Alexander's Angels Symposium The Up of Down: An Insight into
the World of Down Syndrome. Speaking at colleges throughout the tristate area, Kyle's professionalism and humor has kept
audiences mesmerized throughout his presentation.
Katherine is a twenty-six
year old Self-Advocate. Employed at Brookhaven National Laboratory in Upton, N.Y. as Clerical Assistant for
the Quality Management Team. Katherine has been dating her boyfriend for 6 years. She goes to the beach, concerts,
restaurants, movies and more.
BRITTANY SCHIAVONE is the founder of Brittany's Baskets of Hope, a 501(c)3 nonprofit corporation that offers
resources, guidance, support, and hope to families that have recently welcomed a child with Down syndrome into their
MARK MIHOPULOS, M.S. Ed. Is an elementary special education teacher in North Shore Schools. Driven
by the belief that all students can learn and develop their inner strengths, he has been supporting students with special
needs and their families since 2004. Most recently, Mr. Mihopulos has been engaged in the design and implementation
of an elementary life skills program that is routed in inclusive education for students with Down Syndrome.
presenters in front of a portrait of Temple Grandin presented to her as a gift by St. Joseph's College Art Department From left to right, Joe DeMasi, Keith Erickson, Chris
Burke, Barbara Erickson, John DeMasi, Esther Gomez-Nieto and Jacqueline Naughton.
St. Joseph's College Conference 155 West Roe Boulevard, Patchogue,
NY 11772Educating All: Resources and Best Practices for Diverse Learners - ConferenceWorkshop
by Alexander's Angels: The Diversity of Trisomy21 Workshop Leader: Naughton Self-Advocates: Burke, Erickson Introduction: Gomez-Nieto
Thursday, October 24, 2013
12:00 Noon to 1 p.m.
Main Street, New Rochelle
Speakers: Erickson, Hoffman, Kong, White
by Monroe College School of Education
Click on photographs below
Monday, February 4, 2013
Briarcliffe College, Bethpage Campus
– 1:00 PM, Great Room (1 NH)
1055 Stewart Avenue, Bethpage, NY 11714
Speakers: Barry, Baumer, Burke, Dolan, Hoffman
Thursday, February 7, 2013
St. Joseph College, Patchogue, Long Island
to 1:30 p.m., Shea Conference
Room, O'Connor Building (1st Fl)
155 West Roe Blvd., Patchogue, NY 11772
Speakers: Erickson, Gómez-Nieto,
(with short presentation coverage for Dean)
Wednesday, February 13, 2013
Briarcliffe College, Patchogue Campus
11:40 AM – 1:00 PM, Room 223
W. Main Street, Patchogue, NY 11772
Speakers: Gómez-Nieto, Kelly, Laterza, Providenti,
Wednesday, February 20, 2013
College, Queens Campus
11:40 to 1:00 PM, Room Q4
Thomson Avenue, Long Island City, NY 11101
Speakers: Erickson, Gómez-Nieto, Hoffman,
Monday, February 25, 2013
Long Island University — LIU Post
12:00 to 1:30 PM, Top of the Commons, Hillwood
720 Northern Blvd, Brookville,
Speakers: Burke, Cronin, Erickson, Feeley,
March 23, 201228 on 27 (28 W 27 St, NYC) Dr. Michael Harpold (DSRTF) presented the symposium Rapid and Dramatic Progress in Down Syndrome Cognitive Research
– New Research Discoveries to Clinical Trialsas a component of the 3-day program, 9-day artwork exhibition DOWNrightART: Abilities and Possibilities, A Celebration of World
Down Syndrome Day
Friday, December 16, 2011 Roslyn High School(Not open to the general public) Presenters: Erikson (Self-Advocate),
Gómez-Nieto (Alexander's Angels)
September 26, 2011 Briarcliffe College, Queens Campus30-30 Thomson Avenue, Long Island City, NY 11101, 2 p.m. to 3:20 p.m., Room Q4 Speakers: Dean (RDS), Gómez-Nieto (Alexander's Angels),
Wednesday, September 21, 2011
College, Patchogue Campus
W. Main Street, Patchogue, NY 11772, 11:40 a.m. to 1:00 p.m., Room 223
Speakers: Erickson (Self-Advocate),
Gómez-Nieto (Alexander's Angels), McElhatton (DSAF), Sperber (ACDS)
Tuesday, September 20, 2011Briarcliffe
College, Bethpage Campus
1055 Stewart Avenue, Bethpage 11714, 11:40 a.m. to 1:00 p.m., Great Room (1-NH),
Barry (ACDS), Baumer (Self-Advocate), Feeley (L.I.U./CW
(Alexander's Angels), Young (DSAF)
Wednesday, September 14, 2011
Long Island University/C.W. Post
Cinema at Hillwood Commons, 720 Northern Blvd, Brookville, NY 1154, 85:45
to 8:25 p.m.,
Dean (RDS), Erikson (Self-Advocate), Feeley (L.I.U./CW Post),
(Alexander's Angels), Santo (ACDS)
Thursday, October 14th, 2010
Long Island University/CW
Top of the Commons at Hillwood Commons,
Northern Blvd, Brookville, NY 11548, 2 to 4 p.m.,
(ACDS), Dean (DSRTF), Feeley (L.I.U./CW Post),
Gómez-Nieto (Alexander's Angels), Hoffman (DSAF)
Monday, October 4th, 2010
College, Queens Campus
Thomson Avenue, Long Island City, NY 11101, 11:30 a.m. to 1 p.m., Room Q4
Speakers: Dean (DSRTF), Gómez-Nieto (Alexander's
Angels), Smith (ACDS)
Tuesday, September 28, 2010
Briarcliffe College, Bethpage Campus
Avenue, Bethpage 11714, 9:50 – 11:10 AM, Great Room (1 NH)
Speakers: Barry (ACDS), Feeley
(L.I.U./CW Post), Gómez-Nieto (Alexander's
Monday, September 27, 2010
Briarcliffe College, Patchogue Campus
9:50 – 11:10 AM, Room 223, 225 W. Main Street, Patchogue, NY 11772
Speakers: Feeley (L.I.U./C.W. Post), Gómez-Nieto (Alexander's Angels),
Kelly (DSAF), Sperber
Briarcliffe College, Patchogue Campus 225 W. Main Street, Patchogue, NY 11772 , 11:40
a.m. to 1:10 p.m. Speakers: Dean (DSRTF), Escoffier & Sweeney (ACDS), Fevang
(DSAF), Gómez-Nieto (Alexander's Angels)
Briarcliffe College, Bethpage
Campus 1055 Stewart Avenue, Bethpage, NY 11714 , 11:40 a.m. to 1:00 p.m. Speakers: Dean
(DSRTF), Fevang (DSAF), Gómez-Nieto (Alexander's Angels), Granger (ACDS)
Saturday, April 4, 2009
47 West 119th Street, NYC, 12:30 p.m. Introduction:
Gómez-Nieto (Alexander's Angels) Speaker: Hoffman, DSAF President Special Guest:
Traylor McClellan, Founder Down Syndrome Store, www.dsstore.org
Saturday, March 28, 2009
47 West 119th Street, NYC, 12:30 p.m.
Introduction: Gómez-Nieto (Alexander's Angels)Invited Guest: Stephen M. Lazare, DSRTF Board Member
Special Guest: Traylor
McClellan, Founder Down Syndrome Store, www.dsstore.org
November 11, 2008
12:40 to 1:30 p.m., McGann Conference Room, O'Connor Building (3rd Fl)
155 West Roe Blvd., Patchogue,
Speakers: Dean (DSRTF), Gómez-Nieto
College, Bethpage Campus Great Room, 1055 Stewart Avenue, Bethpage, 11:40 a.m. to 1:10
p.m. Speakers: Dean (DSRTF),
Feeley (L.I.U. C. W. Post), Gómez-Nieto (Alexander's Angels),
Hoffman (DSAF), Scoffield (ACDS)
September 22, 2008
Long Island University/CW Post Campus
Pioneer Room at Hillwood Common, 720 Northern Boulevard, 12:30 to 2:00 p.m.
Barry (ACDS), Dean (DSRTF), Feeley (L. I. U. C. W. Post Campus), Gómez-Nieto
(Alexander's Angels), Hoffman
State Farm, Lake Success
(Employees only-not open to the general public)
Speakers: Barry (ACDS), Dean
(Alexander's Angels), McElhatton (DSAF)
Briarcliffe College, Bethpage Campus Great Room.,
1055 Stewart Avenue, Bethpage, 12:00 to 1:30 p.m.Speakers: Barry (ACDS), Dean
(DSRTF), Feeley (L.I.U./C.W. Post Campus), Gómez-Nieto
(Alexander's Angels), Hoffman (DSAF)
October 3, 2007
Long Island University/CW Post Campus
Commons , Top of the Commons, 720 Northern Blvd, Brookville,
12:30 p.m. to 2 p.m.
Barry (ACDS), Dean (DSRTF), Feeley (L.I.U/C. W.
(Alexander's Angels), Hoffman (DSAF)
Cecilia Barry, M.S., P.D., SBL/SDL has been at the Association
for Children with Down Syndrome (ACDS) since1984 in the capacity of School Psychologist, Director of
Intake and Evaluation, and now Principal of ACDS. She received her Master of Science
Degree and Professional Diploma in School Psychology from St. John’s University and received her
certificate in Educational Leadership from St. Rose College. Cecilia’s
professional training and experience have concentrated on early intervention and preschool special
education. She also serves as a consultant to various school districts
on Long Island providing curriculum, behavioral, resource and inclusionary modifications for children with special needs.
Cecilia is a member of professional organizations and panels that advocate for children with developmental
disabilities and their families.
Kristy Baumer, Self-Advocate. Kristy is a young woman
with Down syndrome who is a graduate of Calhoun H.S. She is employed at ACDS,
both in their preschool and daycare programs, as well as working in an administrative
support role at the Center for Family
Supports in Westbury. Her computer skills and use of her cell phone parallel her chronological age mates! She
is an amazing young woman.
Chris Burke, Self-Advocate. When
Chris was born with Down syndrome in New York City in August of 1965, the doctors advised his parents to put him in an institution.
The Burkes not only ignored that advice but treated Chris the same as his older brother and two sisters, a decision that has
lead to a remarkable life and talent! Chris was forced to attend private school because of the lack of public education
for children with Down syndrome and spent his summers in Long Island at a camp for children with disabilities. "Life Goes On" was created after Burke landed the role of a boy with Down Syndrome on the ABC-TV
movie, "Desperate". His work so impressed the network executives that the show's producer was asked to write a show
with Chris in mind. The critically acclaimed drama series "Life Goes On", which earned Burke a Golden Globe nomination
aired on ABC from 1989-1993.
Carolyn Cronin (DSRTF) As the Executive
Director of the Down Syndrome Research and Treatment Foundation (DSRTF),
Ms Cronin provides vision, leadership, strategic direction and administrative oversight to this organization dedicated
to finding a treatment to improve cognition including learning, memory and speech for individuals with Down syndrome.
Before coming to DSRTF, Cronin was President of the National Multiple Sclerosis Society (NMSS) for New York City
– Southern New chapter, President and CEO of Accelerated
Cure Project for MS, Executive Director at the Cystic Fibrosis Foundation, Greater Illinois Chapter. She
also served in leadership positions at other non-profit organizations including Blindness America
and the American Cancer Society. A native of Peru, Indiana, Ms. Cronin attended Ball State University.
She completed the Fundraising Management Program at the Indiana University Center on Philanthropy and most recently was awarded
a scholarship to participate in the Strategic Perspectives in Nonprofit Management Program at Harvard Business School.
Jack Dean, Executive
VP with Re-Tron Technologies in Ridgefield, NJ and a Research Down Syndrome Foundation (RDS) Ambassador
is responsible for organizing many RDS fundraising activities in the NY/NJ area and is also the
father of an adult son with Down syndrome. His presentations describe the general makeup of the DS community, his experience
with raising a DS child and the breakthrough research that will change their lives He goes through his journey from his son’s
birth to where he is today and what his family has had to go through to adjust to his life.
James Dolan, Jr.,PhD, Alexander’s Angels
Vice Treasurer. James R. Dolan, Jr. is a doctor of social work
with over thirty years of experience in delivering and overseeing the provision of care to those with mental health concerns, chemical dependency disorders and developmental disabilities. In
addition, he worked a number of years with child protective services, and was an adjunct professor
at the Adelphi University School of Social Work. He is currently the Director of the
Nassau County Department of Mental Health, Chemical Dependency and Developmental
Disabilities Services, and he continues to function
as a practitioner in his private
psychotherapy practice. Dr. Dolan has a daughter with Down syndrome.
Kyle Erickson, Self-Advocate. Kyle is an alumnus of
the North Shore Schools. He was the first student in his school district to be fully included
in regular education with a one-to-one aide and a modified curriculum. Kyle graduated with his class in 2008 with
an IEP diploma earning the year book attribute "The Most Spirited" as well as the Peer Achievement Award from the
National Honor Society. In September 2008 Kyle began an internship with AXA Equitable in their corporate mail room with
the support of an outstanding job coach. In January 2010, Kyle's dream came true and he was hired by AXA and currently
works independently three days a week. Kyle is extremely proud of his corporate position and is fortunate to work with
a wonderful group of people. In 2011, in connection with a two day a week internship at
Glen Head Elementary School, under the direction of their enrichment teacher, Kyle created a power point presentation about
life with Down syndrome. Kyle presented to each class and spoke about Down syndrome and enjoyed fielding questions from
the students and teachers alike. As a result of this experience, Kyle has decided that he would like to continue advocating
on behalf of individuals with Down syndrome and other disabilities. Kyle is a regular panelist at Alexander's Angels
The Up of Down: An Insight Into the World of Down Syndrome. In Kyle's spare time, he has enjoyed acting in numerous
musical theater productions and singing in the church choir. He loves to swim and has participated in Special Olympics.
He loves fishing with his father, but prefers to drive the boat now that he has his boating license, and loves to attend
Giants football games with his father and older brother. Due to the enormous support that Kyle has received throughout
his lifetime, Kyle has numerous dreams and goals and he is achieving them one by one.
Dr. Kathleen M. Feeley, PhD, is an Associate Professor at LIU Post and the founding director
of the Center for Community Inclusion (whose mission is to enhance inclusive opportunities for individuals
with disabilities in schools, communities, places of leisure and residence, and the work place). Dr.
Feeley has published several studies on the use of behavior analytic interventions to address early developing communication
skills in children with autism and children with Down syndrome and she currently provides technical assistance to several
school districts as they provide inclusive services to children with Down syndrome. Dr. Feeley is also the Director of the
NYS funded Long Island Parent Center and has recently established, with her Colleague Dr. Evelyn Castro from LIU Brooklyn,
the NYC Parent Academy.
M.S. Until moving out of state, Joanne Fevang had a long career as a teacher, served on the Board of Directors for DSAF.
Additionally, she has a 6 year old son with Down syndrome. Her presentation described her experience raising
a young child with Down syndrome today, and discussed how DSAF's dedication to enhancing the lives of individuals with Down
syndrome through advocacy and supporting inclusion within schools, communities, and the work place is making a profound difference
in their lives. At the time of her presentation she was writing a series of children's books intended for all children,
particularly children with developmental disabilities.
Angels President. Eleven year-old
Alexander who has Down syndrome is one of Esther’s ten grandchildren. Upon her retirement in 2006, Esther was instrumental
in the establishment of Alexander’s Angels, Inc, a 501(c)(3) all-volunteer organization responsible for organizing a
Buddy Walk® in L.I; establishing the symposium The Up of Down: An Insight Into the World of Down
Syndrome; as well as DOWNrightART, exhibits of the works of artists with Down syndrome. All
of Alexander’s Angels projects aim to raise awareness of the contributions of individuals with Down syndrome
to society. With a BA from SUNY College at Old Westbury and an MS from LIU Post, Esther returned to her Old Westbury Alma
Mater as a Visiting Instructor where she taught for fourteen years.
Leslie Granger was Director of Development
at ACDS. Before she joined ACDS, she had been working to raise money for a variety of non-profit organizations. While
holding this position, Leslie had found that working to ensure the programs at ACDS are fully funded and that this lifetime
service agency is there for many years to come had been the most rewarding time in her career.
Dr. Michael Harpold is Chief Scientific Officer of
the Down Syndrome Research and Treatment Foundation (DSRTF), and has served as Chair of the DSRTF Scientific Advisory Board
since its inauguration in 2006. He has been involved with DSRTF since 2005, and has served as member of the Board of Directors
(2006-2010) and Chief Executive Officer (2007-2010). Dr.
Harpold has more than 35 years experience in biomedical research within both academia and the biotechnology industry. Prior
to joining DSRTF, Dr. Harpold established EnkephaSys, Inc. as a consultant on research, business, and intellectual property
issues for pharmaceutical and biotechnology companies. In addition, Dr. Harpold was a founding member and an executive of
The Salk Institute Biotechnology/Industrial Associates, Inc. (subsequently SIBIA Neurosciences, Inc.), a biotechnology and
pharmaceutical company in La Jolla, CA. There he served, for 17 years, as the company’s Vice President, Research through
its IPO and prior to its acquisition by Merck. A distinguished molecular and cellular biologist, Dr. Harpold received his
Ph.D. in molecular and developmental biology from Tulane University. He conducted postdoctoral research in molecular cell
biology as a Helen Hay Whitney Fellow at The Rockefeller University in New York. Subsequently, Dr. Harpold was a faculty member
in the Department of Biochemistry, USC Keck School of Medicine and Member of the Norris/USC Comprehensive Cancer Center, following
which he held a senior research appointment with La Jolla Biological Laboratories of The Salk Institute. Dr. Harpold’s
research has involved diverse problems in molecular biology, biotechnology, and biomedical science, including significant
contributions to research in molecular signaling in the nervous system as well as drug discovery primarily focused on disorders
of the nervous system. He is the author of numerous scientific research publications and his work has led to 47 issued U.S.
patents as well as an extensive set of foreign patents.
Mike Hoffman, DSAF's President. Mike Hoffman is a parent of four boys, one of whom has Down syndrome. Mike is a founding
member of the Down Syndrome Advocacy Foundation, a not-for-profit organization that assists families and individuals
with Down syndrome in accessing inclusive environments. Mike is a graduate of Partners in Policy Making and has
had a profound effect on services for children with Down syndrome on Long Island.
Michael Francis Kelly, Esq., DSAF. Mr. Kelly is the Principal of Kelly Development
Corp. focusing on the development of sub-divisions and consulting on various real estate issues. The developer for “The
Riverwalk” in the Village of Patchogue, prior to forming his own businesses, Mike was Vice President of Land Acquisitions
for Pulte Homes of Long Island a Fortune 500 Company. Mike has over 20 years of diversified real estate industry experience, was the President for the Long Island Builders Institute; a former member of Energia, Long
Island’s regional leadership program within Molly College; and has been the recipient of the Paul S. Miller “With
Liberty and Justice for All” award by Touro Law School 2006 and The Good Neighbor of the Year from The Central Islip
Civic Association in 2008. He is a member of the New York State Bar has been appointed for his second term
to the Suffolk County Planning Commission as the Commissions’ Town of Brookhaven representative; and is a member of
the Business Improvement District for the Village of Patchogue. Mike serves on the Board of Directors of
the Down Syndrome Advocacy Foundation and lives in Stony Brook with his wife and 4 children, including Owen who has Down syndrome.
Mr. Kelly has advocated for inclusive preschool and elementary school placements for Owen who is a middle schooler at Murphy
Junior High currently playing basketball and eager about his performance in the school play.
Xiao-Fei Kong, M.D. PhD. Rockefeller University Sponsored Research and
Dr. Xiao-Fei Kong received his MD from
the Yangzhou University in China, and his PhD from the Université Pierre et Marie Curie in Paris, France. He completed
his Residency in internal medicine and Fellowship in infectious diseases at Ruijin Hospital, Shanghai Jiaotong University,
School of Medicine in China. Dr.Kong hold an ECFMG certificate. As a Clinical Scholar and associate attending physician at
Rockefeller University Hospital, Dr. Kong will be characterizing the gene dosage effects of interferon receptor genes to understand
the clinical and immunological features of Down syndrome.
Tania Laterza, Self-Advocate. Tania Laterza is a 40 year old woman with Down syndrome. She has been living in ACDS' first IRA since 2000. Tania has been an aide
in a classroom at ACDS for many years, helping out with the children. She also
works in a doctor's office for the
last 15 years as a file clerk. She was even just featured
in their newsletter for her hard work and dedication to the job. Tania has been advocating for herself for many years and has
even had the honor of speaking at other agency functions in her role as self-advocate. She is perfect example of what can be accomplished when you try.
Stephen M. Lazare,
DSRTF Board Member is a partner at the Manhattan law firm of Lazare Potter & Giacovas
LLP, where he heads the firm's insurance coverage/litigation group. Steve is a 1985 graduate of Albany Law School of
Union University, where he served as the Editor-in-Chief of its Law Review, and a 1982 graduate of St. Lawrence University
where he earned a BA in Economics. He is active in the New York State Bar Association, currently serving as Vice-Chairman
of its Section on Insurance Coverage and is a frequent lecturer and author to the legal community. Steve previously
served on the board of Child Hope International and other non-profit organizations. He was a member of the NDSS New
York City Buddy Walk Steering Committee in 2004 and 2005.
mother of 4; mom and advocate extraordinaire
of Liam McElhatton, who is 12 years old with DS. Husband John, DSAF Board
Member. Deirdre is actively involved in all aspects
of DSAF and is a wealth of information.
Jacqueline Naughton, MS, Alexander's Angels Board of Directors. Jaqueline
Naughton is the Director of the Academic Student Learning Center at Briarcliffe College, as well as a
member of the Provost Council, Academic Standards, Scholarship, and Student Services Committees. Jacqueline chaired
the latter’s work-group for re-accreditation from the Middle States Commission
on Higher Education. A member of the American Counseling Association, Nassau Counselors' Association, National Association
for Developmental Education, and the New York College Learning Skills Association. Ms Naughton has been an unconditional supporter
of Alexander’s Angels, Inc. since 2007.
Anthony Providenti, DSRTF Board Secretary. Mr. Providenti is Vice President - Corporate Business Development
and Special Counsel at Henry Schein, Inc., a Fortune
500 healthcare company. At Henry Schein, Anthony is responsible for
mergers and acquisitions and other strategic transactions that drive growth and profitability. Anthony previously
served as a senior attorney in Henry Schein’s legal department. Prior to joining Henry Schein, Anthony was a senior
corporate and transactional attorney with the New York office of Gibson, Dunn & Crutcher
LLP, an international law firm. Anthony received a J.D. from Fordham University
School of Law where he was a Notes and Articles Editor of the Fordham Law Review, and a B.S. from the College of Business
and Economics at Lehigh University. Anthony and his wife have three children, including a son who has Down syndrome.
Vincent Santo, has been Director of
Development and Corporate Relations at the Association of Children with Down Syndrome (ACDS)
since January 2010. He joined ACDS in May 2005 as Chief Financial Officer and served in that capacity until
October 2008, when he assumed additional responsibilities as Chief Administrative Officer. Prior to joining ACDS, Vinnie spent
most of his career at American Express in a variety of financial management roles, including Assistant Controller. He also
was an Assistant Professor of accounting and finance at St. Joseph’s College from 2002 through 2005. Vinnie is a member
of the Association of Fundraising Professionals and a CPA; he received his BS from Bucknell University and an MBA from Duke
Michael M. Smith,
has been Executive Director of the Association for Children with Down Syndrome
since 2004 and has seen the agency grow to today where it serves almost 1,000 individuals annually in its school, 5Plus, residential,
service coordination, and camp programs. ACDS has 250 employees and has an annual budget in excess of $13million. Michael is a graduate of
Tufts University and has worked with special needs populations for over 30 years. Earlier this year he was honored by Exceptional
Parent magazine at Citifield for his years of exemplary service to the developmentally disabled. He lives with his family
in Greenwich, CT.
Sperber, ACDS. Director of Program Development for the Association for Children with Down Syndrome.
It is ACDS’s mission “to provide lifetime resources of exceptional quality, innovation and inclusion
for individuals with Down syndrome and other developmental disabilities”
Patricia White, M.D.,
a board certified Internist and Fellow of the American Academy of Physicians. She received her M.D. from the State University
of New York, Downstate Medical Center. She joined the Department of Internal Medicine at New York Medical College, where she
was actively involved in medical student education and residency training, was an investigator in several clinical trials,
and served as the Director of the outpatient medical clinic at Westchester County Medical Center and Director of the Medical
Research Associates Headache Center. She retired in 2001 as an Assistant Professor of Medicine. Patricia
and her husband have five children, including a son who has Down syndrome. In addition to her involvement with numerous local
and national advocacy activities, Patricia has been leading participant in the Down syndrome cognitive research effort and
participates in numerous local and national support and advocacy activities on behalf of those with Down syndrome.Dr. White
is a Director on the Board of the Research Down Syndrome (RDS) Foundation.
Randy Young,, DSAF. Randy is the mother of
Thomas, Kate and Sarah Keady. Sarah has Down syndrome. Prior to motherhood, Randy was a social studies teacher
at Roslyn High School, Roslyn, NY. In addition to a M.S. in Education, she has postgraduate degree in Educational Leadership.
Randy's extensive research on Down syndrome lead her to the Down Syndrome Advocacy Foundation. Sarah's education
since preschool has been inclusive and in her community. She attends Wilson Elementary School in Rockville Centre, NY.
Randy is an advocate for inclusive education. Recently, Randy combined her professional and personal experiences
by working for LICoP (Long Island Communities of Practice) overseeing inclusive recreational activities and administering
the TRAID Program. TRAID is a technology related assistance program for individuals with disabilities.